THE Alloa mum of a little boy battling muscular dystrophy has spoken of her delight after life-changing treatment was made available on the NHS.

Amy Cameron’s little boy, Zac, suffers from the severe genetic condition which affects the spine.

Monday saw the landmark decision to make the treatment, called Spinraza, for the condition available in Scotland for children with the most severe form of it – which includes two-year-old Zac.

Those with type two and three of the condition will not, however, be able to get the drug.

Amy said: “We are absolutely over the moon and feel it is a total miracle. We’ve actually got mixed emotions. We are devastated that type two and three won’t get access to the treatment.

“We know quite a few people who won’t get it, so we are devastated for them but delighted for type one.”

Zac has been receiving treatment for more than a year through a special compassionate access scheme and is due to undergo his second phase come August.

Amy, 30, told the Advertiser how much the treatment, which is administered through a spinal injection, has helped her youngest son.

She said: “The results have been amazing. He can now move his legs and lift his arms. He can pick up his own cup which he couldn’t do before. His general health has improved so much; he has so much more energy.”

Amy and her husband, Craig, who live in Alloa with their other son, Caleb, also have high hopes for the next round of treatment.

She continued: “We are hoping to see him get a lot stronger. Our biggest hope is that he gets strong enough to sit up on his own, because at the minute he needs a lot of support.

“He has a brilliant personality. He loves having fun and having a carry-on; he loves talking and just sits chatting away.”

Zac will also start nursery after the summer, a moment Amy felt she might never see.

“We take each day as it comes,” she said. “We try not to focus on the negatives and just be positive about everything. He is starting nursery which is something we weren’t sure we would see, and he will also turn three soon, again that is something else we weren’t sure we would see.”

More than 70,000 children and adults in the UK have a muscle-wasting condition which cause muscles to weaken and waste over time, leading to increasingly severe disability. Some affect the heart and muscles vital for breathing, cutting lives short.

Amy blogs about her family life over at A Different Kind Of Normal.